Clinical Registries
Saudi Gastroenterology Association
Clinical registries are essential tools for improving healthcare quality and understanding disease patterns in Saudi Arabia. The SGA supports several national registries for data collection and analysis to advance clinical practice.
Active Registries
Registries currently collecting data
OASIS — Observational Assessment Study for IBD in Saudi Arabia
Active — Enrolling SitesA national, multicenter, prospective registry inspired by the ENEIDA model — tracking the epidemiology, treatment patterns, and clinical outcomes of inflammatory bowel disease across Saudi Arabia with 10 standardised data forms and biobank integration.
AMBER — Atopic Multicenter registry for Better Eosinophilic Research
Active — Enrolling SitesA national, multicenter registry for eosinophilic esophagitis modeled on the European EoE CONNECT registry — featuring EREFS endoscopic scoring, I-SEE severity classification, EEsAI symptom assessment, and comprehensive treatment tracking across 13 standardised data forms.
PEARL — Prospective Evaluation and Assessment Registry for Liver disease
Active — Enrolling SitesA national, multicenter registry for Metabolic dysfunction-Associated Steatotic Liver Disease (MASLD) benchmarked against the European LITMUS Registry and TARGET-NASH — featuring FIB-4, ELF, VCTE/FibroScan, NAS histologic scoring, Agile 3+/4, and MACK-3 across 15 standardised data forms with biobank integration.
SCOPE — Saudi Clinical Outcomes and Procedural Endoscopy Registry
Active — Enrolling SitesA national, multicenter registry capturing every gastrointestinal endoscopic procedure — EGD, colonoscopy, ERCP, EUS, and video capsule — benchmarked against the UK National Endoscopy Database (NED/JAG) and US GIQuIC, with ESGE/ASGE quality metrics (ADR, cecal intubation rate, Boston Bowel Prep Scale, withdrawal time, ERCP cannulation success, post-ERCP pancreatitis rate) across 12 standardised data forms, with manual REDCap-style entry plus auto-ingest from Provation and Endosoft for accreditation-ready quality reporting.
MOTION — Saudi National GI Motility Registry
Active — Enrolling SitesA national, multicenter, prospective registry capturing every GI motility study — esophageal HRM (Chicago v4.0), pH-impedance, Bravo, EndoFLIP, gastric emptying, wireless motility capsule, antroduodenal manometry, anorectal manometry (London Classification), balloon expulsion, defecography, colonic transit, colonic manometry, and biofeedback sessions — with ANMS/ESNM quality metrics across 17 standardised data forms, manual REDCap-style entry plus auto-ingest from Medtronic ManoScan, Laborie MMS Solar GI, Diversatek InSIGHT, and Alacer SmartPill.
SHIELD — Saudi Hepatitis B Investigation, Evaluation, and Longitudinal Database
Active — Enrolling SitesA national, multicenter registry for chronic hepatitis B benchmarked against the BRIDGE study and REVEAL-HBV cohort — featuring PAGE-B and REACH-B HCC risk scores, quantitative HBsAg monitoring, HBV DNA viral load tracking, genotyping, and functional cure assessment across 12 standardised data forms with biobank integration.
Planned Registries
Registries in development and planning phase
Saudi Celiac Disease Registry
PlannedDocumenting the prevalence, clinical presentation, and long-term outcomes of celiac disease in the Saudi population, including pediatric and adult cases.
Lead: SGA Research Group
Saudi Liver Transplant Registry
PlannedA comprehensive registry of liver transplantation outcomes, graft survival, and post-transplant complications across Saudi transplant centers.
Lead: SASLT / SGA
Saudi HCC Surveillance Registry
PlannedMonitoring hepatocellular carcinoma (HCC) incidence, surveillance adherence, staging at diagnosis, and treatment outcomes in patients with chronic liver disease.
Lead: SGA Hepatology Interest Group
Saudi GI Bleeding Registry
PlannedProspective registry documenting acute upper and lower GI bleeding presentations, management strategies, and clinical outcomes across emergency departments in Saudi Arabia.
Lead: SGA
Want to Participate in a Registry?
We invite all GI centers across Saudi Arabia to participate in our national registries. Contact us to learn how your center can become a contributing site.