AMBER
Atopic Multicenter registry for Better Eosinophilic Research
A national, multicenter, prospective registry tracking the epidemiology, treatment patterns, and clinical outcomes of eosinophilic esophagitis across Saudi Arabia, modeled on the European EoE CONNECT registry, governed by the SGA.
Registry Objectives
- Establish a comprehensive, prospective national database for EoE patients across Saudi Arabia
- Characterize the epidemiology and clinical phenotypes of EoE in the Saudi population
- Track treatment patterns including PPI, topical steroids, diet elimination, and biologics
- Assess long-term outcomes and disease natural history
- Facilitate collaborative multicentre studies using clinical data
About AMBER
AMBER aims to establish a comprehensive, prospective national database for EoE patients across Saudi Arabia. The registry facilitates the collection of clinical data of interest for clinical care practice, and carries out collaborative multicentre studies using clinical data.
Inspired by successful international models such as the European EoE CONNECT registry (39 centres, EUREOS consortium), the Swiss SEECS cohort study, and the US CEGIR consortium, AMBER represents the first comprehensive national EoE registry in the region.
Regulatory Compliance
AMBER complies with the Saudi Personal Data Protection Law (PDPL) and is HIPAA-aligned. All data is encrypted and monitored with full audit logging of all access.